We are home. And Ford is thriving!
We were discharged on Friday, August 23rd. We spent this weekend enjoying the amenities of our own home, mostly our own beds & not paying for coffee! 😂 And have enjoyed watching Ford become his normal self: full of smiles & laughter and an appetite that could put a grown man to shame. His sass is back full force and he makes sure to let us know when he wants to be the center of attention.
We are already seeing the benefits of his surgery. Ford has always tucked his chin down after a few seconds of holding his head up due to the pressure on his brain. Y’all, we can see his neck now because he holds his head up! His balance has also improved, he is sitting up for longer periods of time and reaching for toys without toppling over. The size of his forehead and even the shape of his head have changed. He feels lighter when we pick him up because he’s supporting more of his own weight. We pray the ETV surgery continues to work as we can so obviously see the benefits.
Since being home, Ford has had some pretty intense nightmares. The hospital stay(s) were traumatic for him. The ONLY thing that comforts him is snuggling his head as close as he can to us and rocking him back to sleep. We hope that as we gain more normalcy and get back into our routine, the nightmares will subside.
Thank you again from the bottom of our hearts for the love, support, and concern during this awful experience. It takes a village to raise a baby and y’all prove time and time again that my village rocks! ❤️❤️❤️