ETV Surgery

Endoscopic Third Ventriculostomy (ETV): A surgical procedure to treat hydrocephalus by creating an opening in the floor of the third ventricle. The opening allows the cerebrospinal fluid to drain from your child’s brain.

This is the surgery Ford had done on Friday. He had an MRI on Saturday to ensure the surgery is working properly and it is!!!  Because of Ford’s age, there is a 70% chance of this procedure staying successful. If the fluid continues to drain for 6 months, there is a 99% chance he will not have to have surgery again. After a year of draining, it would be extremely rare for Ford to ever have surgery again for hydrocephalus. My prayers were answered that he came back to me & now my prayers are that this surgery continues to work. ❤️

Update from Sunday: Ford was admitted to Primary’s on Sunday for Ilius. Ilius is when the intestines are “stunned” after a surgery & they do not work properly. He was observed for over 24 hours & we worked on getting his bowels moving again. Also, his pain is back under control. He was discharged today & we are home. He is doing well and slowly getting his appetite back. He is having severe separation anxiety due to being whisked away for 3 days of procedures. He goes through waves of pain & discomfort but shows glimpses of his sweet personality. I’m so thankful to call this sweet soul my son!